This has been a bit of a roller coaster for all involved over the past 18 months, which I'm very much on the periphery of but its still upset me quite a lot. Sadly there's nothing money can do for Lola at this point, but if anyone can help out with sponsorship the money will go towards helping diagnosis/treatment of other people
http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=JuliaColhoun
No need to say if you have or havent donated - I know everyone has their own preferred charities :) Just wanted to mention this one.